Disability Expert by Experience Board

An Expert by Experience Board is a group of individuals who have direct, lived experience of disability and who work collaboratively with organisations to influence service design, policy development, and strategic decision-making. Rather than relying solely on professional or clinical viewpoints, the board recognises lived experience as a form of expertise that provides valuable insight into the real-world impact of systems, environments, and services.

Members may include people with physical, sensory, learning, neurodivergent, or mental health disabilities, as well as carers or individuals with intersecting experiences. By sharing their perspectives, members help organisations better understand barriers, improve accessibility, promote equality, and create more inclusive practices.

The board typically contributes through consultation, co-production, reviewing policies or materials, advising on accessibility, participating in project planning, and evaluating services. Their involvement helps ensure that decisions are informed by those directly affected, leading to more person-centred, equitable, and effective outcomes.

An Expert by Experience Board also promotes empowerment, representation, and accountability, ensuring disabled voices are heard, valued, and embedded within organisational culture rather than consulted only at later stages.